I Am Somebody: Bringing Dignity and Compassion to Alzheimer’s Caregiving

Speak to me
For I am still here
I understand hugs and smiles
And loving kindness.
Speak to me and not around me.
I am not a she or her or even a room number.

The challenges of Alzheimer’s disease—the physical burdens, financial costs, emotional turmoil and family strife—can reduce our loved one to a “he” or a “she,” a person almost devoid of humanity. As caregivers, our lives revolve around the basics, like doctor’s appointments and dressing, feeding and cleaning up after our loved ones. Their life becomes our life; our life becomes theirs. But who are they now that this disease has taken over? And just as important, who are we?

I Am Somebody: Bringing Dignity and Compassion to Alzheimer’s Caregiving is a unique guide for using poetry and journaling to become a more compassionate caregiver—a therapeutic tool offering advice and insights from men and women who have made this difficult journey. Whether or not you choose to pick up a pen yourself, this revealing book is a reminder that both loved one and caregiver deserve compassion, respect and a life with dignity. Each one of us is somebody.

"A beautiful and thoughtful exploration of the many emotions and experiences of caregiving for a loved one with dementia. Caregivers reading this book will learn that they are not alone and may also find a way to reframe their caregiving journey." —Michelle Johnston, Regional Director, Alzheimer's Association Northern California & Northern Nevada Chapter

"Frances' work inspires out capacity for generosity and compassion and motivates us to action. Read, savor and share." —Mike Splaine, Policy Adviser, Alzheimer's Disease International

"Frances Kakugawa's poetry and tips were so touching and encouraging. They are a reminder that my mom is not just defined by 'Mom,' but is a woman in her own right—not a child—trying to hang on to her sense of self and dignity even as she loses her memories." —Gayle Miya, Keiro Senior HealthCare Genki Conference volunteer

Softcover, 264 pp.
Author: Frances H. Kakugawa
Release Date: October 2014

Available in e-book format!